Patience
Scott, Victoria2021
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The story of Patience, a severely disabled young woman, and her family's decision to enter her into a pioneering but risky gene therapy trial. If you were offered a chance to cure your child's disease, would you take it? The Willows have been through a lot. Louise has devoted her life to caring for her disabled youngest daughter. Pete works abroad, almost never seeing his loved ones. And their eldest, Eliza, is burdened by all the secrets she's trying to keep from her overloaded family. Meanwhile, Patience observes the world while trapped in her own body. She laughs, she cries, she has opinions and knows what she wants. But those who love her most – and make every decision about her life – will never know. Or will they? When the Willows are offered the opportunity for Patience to take part in a new gene therapy trial to cure her Rett syndrome, they face an impossible dilemma. Are the very real risks worth the chance of the reward, no matter how small?
Main title:
Patience / Victoria Scott.
Author:
Scott, Victoria, author
Imprint:
London : Head of Zeus, 2021.©2021.
Collation:
425 pages ; 23 cm.
Notes:
Includes book club questions."Normal doesn't exist. We're all extraordinary."-- On cover.
ISBN:
9781800240896 (trade paperback)180024089997818002408891800240880
Language:
English
Subject:
BRN:
126556